Książki

This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. 

Public Policy in ALS/MND Care: An International Perspective

1. Introduction to Public Policy of ALS/MND.- 2. Public Policy in MND Care: The Australian Perspective.- 3. Public Policy in ALS/MND Care: The Belgian Perspective.- 4. Amyotrophic Lateral Sclerosis in Brazil.- 5. Public Policy of ALS in Canada.- 6. Public Policy for Amyotrophic Lateral Sclerosis in China.- 7. German Perspective on ALS/MND Policy .- 8. Living and Dying with ALS/MND in India: Public Policy and Private Realities.- 9. The Experience of Amyotrophic Lateral Sclerosis in Ireland.- 10. Public Policy in ALS Care in Israel.- 11. Public Policy in ALS Care: The Italian Situation.- 12. ALS Policy: A Japanese Perspective.- 13. ALS Policy in Mexico.- 14. Public Policy of MND: A Nigerian Perspective.- 15. Public Policy of ALS: A Pakistani Perspective.- 16. Public Policy in ALS Care: The Polish Perspective.- 17. ALS Policy: A Russian Perspective.- 18. Public Policy in ALS/MND Care: South African Perspective.- 19. Public Policy of ALS: South Korea.- 20. Amyotrophic Lateral Sclerosis Care in Tunisia.- 21. Public Policy in MND Care: The United Kingdom.- 22. ALS Public Policy in the United States.- 23. Conclusions: What We Can Learn from the Country Perspectives.