Based on detailed studies of the actual use of genetic testing in context, this book looks at the ethical and political questions raised by the expanding role of genetic information in society. In contrast to the established perspective which focuses on individual freedom, the authors emphasize a pragmatic approach focussed on societal learning.
Genetics from Laboratory to Society: Societal Learning as an Alternative to Regulation
Table of contents
Preface Notes on Contributors The 'Unknown' Practice of Genetic Testing; G.de Vries Constructing Results in Prenatal Diagnosis; Beyond Technological Testing and Moral Decision Making; M.van Zwieten Genetic Diagnostics for Hereditary Breast Cancer - Displacement of Uncertainty and Responsibility; M.Boenink Lifestyle, Genes and Cholesterol: New Struggles about Responsibility and Solidarity; K.Horstman Detecting Familial Hypercholesterolemia: Escaping the Family History?; K.Horstman & C.Smand Genetics and Insurance: New Technologies, New Policies, New Responsibilities; I.van Hoyweghen Work, Health and Genetics: Problems of Regulation in a Changing Society; R.Benschop & G.de Vries Genetic Risks and Justice in the Workplace: The End of the Protection Paradigm?; R.Vos Learning From The Work That Links Laboratory to Society; G.de Vries & K.Horstman Bibliography Index
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